Let's be honest. I am not good at updating this blog. As a matter of fact, I tend to purposely stay away from it because I am nervous about posting what "really" goes on around here. I stopped blogging because just doing cute posts about my kids isn't the whole story of my life and if I wasn't willing to share all of it, I wasn't going to share any of it. I became afraid of this space- afraid of looking weak and vulnerable. However, my favorite blogs to read are the ones that are REAL- blogs that convey the good and the bad, the easy and the hard, the cute and the ugly. So maybe, if I lay it all out there, this may become a more populated space.
Sitting in my neurologist's office two weeks ago, I had to give a thorough account of my medical history (which, took a good 2 hours). It went something like this:
18 yrs. old: fatigue, lack of REM sleep, pain in head, neck, back, legs, nerves, burning feet
19 yrs. old: fatigue, lack of REM sleep, pain (everywhere), nerve spasms in lower back and legs, nerve spasms that cause bruising in legs and feet, unable to move legs (one time), burning feet, surgery on both knees, physical therapy
20 yrs old: Diagnosis of Fibromyalgia and Degenerative Disc Disease (DDD), all above symptoms, pinched nerves, swollen tail bone with monthly cortisone shots in tailbone joint (with surgery set for tailbone removal), and about 10 different medications that turned me into "Zombie Stacie"- tired, lifeless, nauseous, and shaky.
21 yrs old: 4 days after my birthday I went through the Salt Lake Temple. My body went through a miraculous change- no longer had major symptoms and no longer needed tailbone surgery or medicine. That was a very sacred and special day in my life and I have so much gratitude for the healing and blessings I received that day. I occasionally would have a few nerve spasms, but they were short and not very painful. This was also the year I met and married my husband and graduated from BYU.
22 yrs old: Gave birth to Hunter, had occasional nerve spasms
23 yrs old: Occasional nerve spasms, occasional pain with my DDD.
24 yrs. old: had some major pain/issues with my DDD and had increasing nerve pain. Really starting to believe this is not Fibromyalgia.
25 yrs old: Gave birth to Ryan, tail bone problems, electric shocks from neck to feet, numb tongue, leg/arm weakness, slow brain, extreme fatigue, nerve spasms, and then the lovely hospital stay where I couldn't move my legs for 3 days. Had brain, neck, lumbar spine, and thoracic spine MRI's, insane amounts of blood work, spinal tap, and then a blood patch to fix spinal headache from spinal tap.
26 years old (now): Can't move legs on a regular basis, electric shock in neck, nerve spasms in neck/legs/feet, burning legs/feet, severe headaches, numbness, extreme exhaustion, panic attacks from not being able to move in public places.
After discussing this medical history with my Dr. he immediately scheduled me for a CT scan, EEG, more blood work, and 2 nerve conduction studies (also called "EMG"- which I describe and being "tased" over and over again- my least favorite test), which were all completed last week.
As you can see, I am a wreck. But finally, after 8 years, I have been diagnosed with Multiple Sclerosis. More to come on the diagnosis and my thoughts/feelings about all this. I will say, at the moment, that my case with MS is not life threatening. It's just really, really annoying.