Sunday, April 22, 2012

Diagnosed...

Let's be honest. I am not good at updating this blog. As a matter of fact, I tend to purposely stay away from it because I am nervous about posting what "really" goes on around here. I stopped blogging because just doing cute posts about my kids isn't the whole story of my life and if I wasn't willing to share all of it, I wasn't going to share any of it. I became afraid of this space- afraid of looking weak and vulnerable. However, my favorite blogs to read are the ones that are REAL- blogs that convey the good and the bad, the easy and the hard, the cute and the ugly. So maybe, if I lay it all out there, this may become a more populated space.

Sitting in my neurologist's office two weeks ago, I had to give a thorough account of my medical history (which, took a good 2 hours). It went something like this:

18 yrs. old: fatigue, lack of REM sleep, pain in head, neck, back, legs, nerves, burning feet

19 yrs. old: fatigue, lack of REM sleep, pain (everywhere), nerve spasms in lower back and legs, nerve spasms that cause bruising in legs and feet, unable to move legs (one time), burning feet, surgery on both knees, physical therapy

20 yrs old: Diagnosis of Fibromyalgia and Degenerative Disc Disease (DDD), all above symptoms, pinched nerves, swollen tail bone with monthly cortisone shots in tailbone joint (with surgery set for tailbone removal), and about 10 different medications that turned me into "Zombie Stacie"- tired, lifeless, nauseous, and shaky.

21 yrs old: 4 days after my birthday I went through the Salt Lake Temple. My body went through a miraculous change- no longer had major symptoms and no longer needed tailbone surgery or medicine. That was a very sacred and special day in my life and I have so much gratitude for the healing and blessings I received that day. I occasionally would have a few nerve spasms, but they were short and not very painful. This was also the year I met and married my husband and graduated from BYU.

22 yrs old: Gave birth to Hunter, had occasional nerve spasms

23 yrs old: Occasional nerve spasms, occasional pain with my DDD.

24 yrs. old: had some major pain/issues with my DDD and had increasing nerve pain. Really starting to believe this is not Fibromyalgia.

25 yrs old: Gave birth to Ryan, tail bone problems, electric shocks from neck to feet, numb tongue, leg/arm weakness, slow brain, extreme fatigue, nerve spasms, and then the lovely hospital stay where I couldn't move my legs for 3 days. Had brain, neck, lumbar spine, and thoracic spine MRI's, insane amounts of blood work, spinal tap, and then a blood patch to fix spinal headache from spinal tap.

26 years old (now): Can't move legs on a regular basis, electric shock in neck, nerve spasms in neck/legs/feet, burning legs/feet, severe headaches, numbness, extreme exhaustion, panic attacks from not being able to move in public places. 

After discussing this medical history with my Dr. he immediately scheduled me for a CT scan, EEG, more blood work, and 2 nerve conduction studies (also called "EMG"- which I describe and being "tased" over and over again- my least favorite test), which were all completed last week.

As you can see, I am a wreck. But finally, after 8 years, I have been diagnosed with Multiple Sclerosis. More to come on the diagnosis and my thoughts/feelings about all this. I will say, at the moment, that my case with MS is not life threatening.  It's just really, really annoying.

18 comments:

Jessica nan said...

Oh Stace, I'm so sorry you've had such a rough go, and it doesn't sound like it's going to get much easier, but what a blessing they've finally been able to diagnose this. I'll be sure to keep you and your family in my prayers <3 love you guys!

Carolyn said...

Stacie, I am so sorry to hear about this! You are an amazing woman and I am so impressed with your realism and optimism. I will be praying for you and I hope you know that I admire you. I wish you the best of luck! Sending hugs your way from Boston. Love, Carolyn

mwoodall said...

Stacie! I am so sorry. I think you're an amazing woman and I respect you so much. I know you'll make it through this because you are such a strong and wonderful person. I had no idea you had any problems with this in the past. But I do think it is good to open up about these kinds of things so others can be inspired by you and so others can try and help uplift you as well.

Bethany said...

That's intense! I'll be praying for you and I'll let Adam know so that he can pray too. What a bummer, and yet, what a relief at the same time, to finally know what's up!

Aleasha said...

I am so sorry. Many prayers coming your way.
Love,

Aleasha Hansen Smith

Karen said...

We will keep you in our prayers Stacie! Thanks for being willing to share. I agree with you, my favorite blogs to read also include the bad with the good, so way to go you for being willing to open up about your life! And now I can pray for you.

Katie said...

Wow. So sorry that you have been going through all this. You will be in my prayers and I will pray that you find help and answers.

Katie Lewis said...

Stacie, you amaze me. Truly. You and your sweet family will definitely be in my thoughts and prayers. I definitely agree with your view on blogging. I hope you'll continue to keep us all updated. Love you, friend.

Racquel said...

Stacie! You are one strong cookie! We will definitely be praying for you and we are right across the street. PLEASE call! Any time! If you need a meal, babysitting, etc.

Jonathan and Marissa said...

Oh Stace. I knew there was a reason I had been thinking about you so much lately! I only wish I had done more about it and actually come to see you and be a closer friend. I am glad you finally have some answers, and I hope now that means they can find a more effective way to manage your symptoms. We'll be praying for you, and I will come see you this week.

bryan said...

Oh my...I'm very sorry to hear about all of the trouble you've been having. I wish the best for you and your family as you guys deal with these medical issues. You're a tough cookie.

Brie said...

Stacie - Thanks for sharing all of your life with us. I too love blogs that share the good and the bad. I'm so sorry to hear how difficult and painful life has been. Looking at your medical history I got to spend time with you during the easiest parts and to me they seemed difficult. You are a strong, amazing women. I'm so glad that you were finally diagnosed. You will be in my prayers!

kelly jewell said...

Lots of love, love, love!

Pablo, Syd and Charlotte said...

Wow Stac! After all that time you finally have a diagnosis. I'm so glad you do cuz now you can get the treatment you really need. You are so awesome and you've always been such a great example of strength and courage to me and so many others! I hope it all gets better from here! My love and prayers!
Syd

TAMMY CLARIDGE said...

Stacie,
That was as honest as it gets and it is like a relief when you come out and write such "real" things for all to know. I applaud you for that and I know this is the first step to many more trials... but also many blessings to come as well.

As I was reading your history, I thought of MS in the back of my mind, even though I am not too familiar with it. You HAVE been through a lot. And knowing you and how strong you are and that you have an amazing family and husband, you will be fine because you also are close to your Heavenly Father. I will pray for your annoyances dear lady. Love you!

Cassidy said...

I'm so sorry Stacie! I hope the doctors will be able to give you some relief and that this won't interfere with the boys! Praying for you!

Jamie said...

:( I'm so so sorry Stacie that you have had to go through all of this... You are such a strong and amazing person... trully an example to so many people. I wish you the best of luck through all of this and please please please let me know if there is anything we can do for you.

Matthew and Lindsey said...

Wow. I can't even imagine the struggle and the emotional dollar coaster you have been on. I am amazed at your outlook and your courage and will definitely keep you in our prayers.